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Evidence/Kinds of health data

Health record extract

A full export of your electronic health record from a clinic or hospital portal.

Worth, per patient record

$79

$23 to $134

How it is priced

Planned: not collected on the platform yet.

Patients usually have it with

COPDType 2 diabetesEpilepsyAsthmaADHDALSHuntington's diseaseObesityPCOSPsoriasis

Evidence about it (29)

  • CPRD linked hospital data (Hospital Episode Statistics, ONS death registration) added to a primary care study, per linked datasetWhat health data sells for£4,400 per dataset
  • CPRD Basic multi-study annual licence to UK primary care data, non-commercialWhat health data sells for£45,000
  • CPRD Full multi-study annual licence to UK primary care data (GOLD and Aurum), commercialWhat health data sells for£363,000
  • NHS EHR/EMR data, estimated market value per patient recordWhat health data sells for<£100
  • NHS patient record linked with genomic and phenotypic data, estimated market value per recordWhat health data sells for£1000–5000
  • GSK expanded access to the Tempus patient data platform for drug discovery and trial designWhat health data sells for$70 million
  • NHS England bespoke data linkage charge, per dataset per disseminationWhat health data sells for£2862
  • Recursion licence of Tempus de-identified clinical and molecular records for AI model training, annual feeWhat health data sells for$22.0 million and $42.0 million
  • Recursion licence of Tempus de-identified records, total over the five-year termWhat health data sells for$160.0 million
  • Structured electronic health record data licence, one therapeutic areaWhat health data sells for$1–3 million
  • Specialty unstructured EHR data needing extensive curation, one therapeutic areaWhat health data sells for$3–5 million
  • Pathos licence fee spread over the size of the Tempus database (arithmetic over two stated numbers)What health data sells for$200 million
  • Pathos AI licence of Tempus de-identified multi-modal oncology dataset to build a foundation model, three yearsWhat health data sells for$200 million
  • UK Biobank Tier 1 data access (questionnaires, physical measurements, health outcome phenotypes, linked health data), first three yearsWhat health data sells for£3,000
  • CPRD single-study fee for cancer registration plus systemic therapy and radiotherapy linked data against cancer registration data aloneWhat makes health data worth more£4,400 and £16,300
  • NHS patient record linked with genomic and phenotypic data against EHR/EMR data aloneWhat makes health data worth morebetween £1000–5000 per record when combined with genomic and phenotypic data
  • Curated unstructured EHR data licence against claims data licence, per therapeutic area per year (price ladder)What makes health data worth more$100k–300k per therapeutic area (claims) and $3–5 million per TA (curated EHR)
  • Structured EHR data licence against claims data licence, per therapeutic area per year (price ladder)What makes health data worth more$100k–300k per therapeutic area (claims) and $1–3 million per TA (structured EHR)
  • Long-term oxygen therapy review with pulse oximetryRecords patients typically holdat least once per year
  • Blood pressure measurementRecords patients typically holdat least annually
  • EEG (electroencephalogram)Records patients typically holdat diagnosis
  • Spirometry with bronchodilator reversibilityRecords patients typically holdat diagnosis (repeat as clinically needed)
  • Heart rate and blood pressure monitoringRecords patients typically holdevery 6 months
  • Weight, diet, nutrition and swallowing assessmentRecords patients typically holdAt diagnosis and at multidisciplinary team assessments
  • Respiratory function monitoring resultsRecords patients typically holdAssess and monitor the person's respiratory function and symptoms.
  • Malnutrition screening (MUST) and weight recordsRecords patients typically holdScreening tools for malnutrition [e.g., malnutrition Universal Screening Tool (MUST)] are recommended.
  • Height, weight and waist circumference measurementsRecords patients typically holdheight weight waist circumference
  • Blood pressure measurementRecords patients typically holdannually
  • Cardiovascular risk assessmentRecords patients typically holdevery 5 years
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