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Conditions/Women's health

PCOS

What research knows about PCOS comes from people who live with it. Here is how many do, what records they usually have, and what sharing yours is worth.

Living with it

65.8 million

Women aged 15 to 49 living with polycystic ovary syndrome worldwide, 2021

source

New diagnoses

One every 27 seconds

1.2 million a year, worldwide, women aged 15 to 49

source

How rare

Common

about 82 in 10,000 people

sourcesourcesource

What patients usually have

The records behind PCOS

  • Blood pressure measurement

    Health record extract

    annually and when planning pregnancy or fertility treatment

    guideline
  • Glycaemic status test (OGTT, fasting glucose or HbA1c)

    Repeated lab results

    every one to three years, based on diabetes risk factors

    guideline
  • Fasting lipid profile

    Lab results

    at diagnosis, thereafter guided by results and CVD risk

    guideline
  • Oral glucose tolerance test (OGTT) when planning pregnancy

    Lab results

    when planning pregnancy, at the first antenatal visit and repeated at 24-28 weeks gestation

    guideline

What sharing it is worth

$40

per licence for a complete story and one year of these records, $40 to $389

Value your own data
  • Your health story$23how
  • Lab resultsx3$0.58how
  • Repeated lab resultsx1$0.24how
  • Richness premium (2 kinds of data linked)x1.67how

A benchmark from published prices, not a promise: contributors earn a share each time a licence includes their data. How the benchmark works · What health data sells for

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