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Conditions/Brain and nerves

Epilepsy

What research knows about epilepsy comes from people who live with it. Here is how many do, what records they usually have, and what sharing yours is worth.

Living with it

50 million

People with epilepsy, worldwide

source

New diagnoses

One every 6.3 seconds

5 million a year, worldwide

source

How rare

Common

about 63 in 10,000 people

sourcesourcesource

What patients usually have

The records behind epilepsy

  • 12-lead ECG after a first seizure

    ECG

    after a first suspected seizure

    guideline
  • EEG (electroencephalogram)

    Health record extract

    at diagnosis

    guideline
  • Epilepsy monitoring review

    Doctor's letters

    regular (at least annual)

    guideline
  • MRI of the brain

    Scan reports

    at diagnosis

    guideline

What sharing it is worth

$95

per licence for a complete story and one year of these records, $95 to $1,206

Value your own data
  • Your health story$23how
  • ECGx1$1.86how
  • Lab resultsx1$0.24how
  • Doctor's lettersx1$3.49how
  • Scan reportsx1$2.79how
  • Richness premium (5 kinds of data linked)x3how

A benchmark from published prices, not a promise: contributors earn a share each time a licence includes their data. How the benchmark works · What health data sells for

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