IgA nephropathy
What research knows about igA nephropathy comes from people who live with it. Here is how many do, what records they usually have, and what sharing yours is worth.
Living with it
2.53 per 10 000
Point prevalence of IgA nephropathy, all ages, 10 European countries
sourceNew diagnoses
0.76 per 100 000
Annual incidence of biopsy-verified IgA nephropathy, all ages, 10 European countries
sourceWhat patients usually have
The records behind igA nephropathy
What sharing it is worth
$198
per licence for a complete story and one year of these records, $172 to $2,632
- Your health story$23how
- Pathology reportsx2$6.07how
- Repeated lab resultsx1$0.15how
- Rarity premium (rare)x2.88how
- Richness premium (3 kinds of data linked)x2.33how
A benchmark from published prices, not a promise: contributors earn a share each time a licence includes their data. How the benchmark works · What health data sells for
Already paid elsewhere
What people with igA nephropathy have been paid for sharing
Published payments for a research interview or survey about it. What patients are paid for research
IgA nephropathy
$150
IgA nephropathy patients, 90-minute phone interview
Rat Race Rebellion, 2025source