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Conditions/Skin

Vitiligo

What research knows about vitiligo comes from people who live with it. Here is how many do, what records they usually have, and what sharing yours is worth.

Living with it

28.5 million

People with physician-diagnosed vitiligo, general population worldwide

source

New diagnoses

24·7 cases (95% CI 24·3-25·2) per 100 000 person-years

Vitiligo incidence in the general population, most recent years studied

source

How rare

Common

about 36 in 10,000 people

sourcesourcesource

What patients usually have

The records behind vitiligo

  • Screening for autoimmune and psychosocial comorbidities in vitiligo

    Lab results

    not stated

    guideline
  • Dermatology Life Quality Index questionnaire in vitiligo

    Health questionnaires

    not stated

    guideline
  • Reassessment of response during phototherapy for vitiligo

    Doctor's letters

    periodically over a 6 to 12 month course

    guideline

What sharing it is worth

$86

per licence for a complete story and one year of these records, $86 to $1,099

Value your own data
  • Your health story$23how
  • Lab resultsx1$0.15how
  • Health questionnairesx1$1.86how
  • Doctor's lettersx1$3.49how
  • Richness premium (4 kinds of data linked)x3how

A benchmark from published prices, not a promise: contributors earn a share each time a licence includes their data. How the benchmark works · What health data sells for

Already paid elsewhere

What people with vitiligo have been paid for sharing

Published payments for a research interview or survey about it. What patients are paid for research

  • Vitiligo

    $130

    Vitiligo patients, 60-minute phone interview

    Rat Race Rebellion, 2025source

  • Vitiligo

    $40

    Vitiligo patients ages 18 to 71, 20-minute online survey

    Rat Race Rebellion, 2025source

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