Ulcerative colitis

What research knows about ulcerative colitis comes from people who live with it. Here is how many do, what records they usually have, and what sharing yours is worth.

Living with it

6.8 million

People living with inflammatory bowel disease (Crohn's disease and ulcerative colitis together) worldwide, 2017

source

New diagnoses

One every 84 seconds

375,140 a year, worldwide

source

How rare

Common

about 8.5 in 10,000 people

source source source

What patients usually have

The records behind ulcerative colitis

Baseline colonoscopy with targeted biopsy
Pathology reports
once, to set the surveillance risk
guideline
Surveillance colonoscopy
Pathology reports
every 5 years (low risk), 3 years (intermediate risk), 1 year (high risk)
guideline
Review of biologic or JAK inhibitor treatment
Medication history
at least every 12 months
guideline

What sharing it is worth

$74

per licence for a complete story and one year of these records, $74 to $870

Value your own data

Your health story$23how
Pathology reportsx2$6.07how
Medication historyx1$2.33how
Richness premium (3 kinds of data linked)x2.33how

A benchmark from published prices, not a promise: contributors earn a share each time a licence includes their data. How the benchmark works · What health data sells for

Already paid elsewhere

What people with ulcerative colitis have been paid for sharing

Published payments for a research interview or survey about it. What patients are paid for research

Crohn's disease, Ulcerative colitis
$210
Crohn's disease, microscopic colitis and ulcerative colitis patients, 90-minute phone interview plus confirmation of diagnosis
Rat Race Rebellion, 2025source

Share your story about ulcerative colitis All conditions

Ulcerative colitis

What research knows about ulcerative colitis comes from people who live with it. Here is how many do, what records they usually have, and what sharing yours is worth.

Living with it

6.8 million

People living with inflammatory bowel disease (Crohn's disease and ulcerative colitis together) worldwide, 2017

source

New diagnoses

One every 84 seconds

375,140 a year, worldwide

source

How rare

Common

about 8.5 in 10,000 people

source source source

What patients usually have

The records behind ulcerative colitis

Baseline colonoscopy with targeted biopsy
Pathology reports
once, to set the surveillance risk
guideline
Surveillance colonoscopy
Pathology reports
every 5 years (low risk), 3 years (intermediate risk), 1 year (high risk)
guideline
Review of biologic or JAK inhibitor treatment
Medication history
at least every 12 months
guideline

What sharing it is worth

$74

per licence for a complete story and one year of these records, $74 to $870

Value your own data

Your health story$23how
Pathology reportsx2$6.07how
Medication historyx1$2.33how
Richness premium (3 kinds of data linked)x2.33how

A benchmark from published prices, not a promise: contributors earn a share each time a licence includes their data. How the benchmark works · What health data sells for

Already paid elsewhere

What people with ulcerative colitis have been paid for sharing

Published payments for a research interview or survey about it. What patients are paid for research

Crohn's disease, Ulcerative colitis
$210
Crohn's disease, microscopic colitis and ulcerative colitis patients, 90-minute phone interview plus confirmation of diagnosis
Rat Race Rebellion, 2025source

Share your story about ulcerative colitis All conditions