Type 1 diabetes

What research knows about type 1 diabetes comes from people who live with it. Here is how many do, what records they usually have, and what sharing yours is worth.

Living with it

8.4 million

Individuals worldwide with type 1 diabetes, 2021

source

New diagnoses

One every 63 seconds

500,000 a year, worldwide

source

How rare

Common

about 11 in 10,000 people

source source source

What patients usually have

The records behind type 1 diabetes

Annual review of self-care and needs
Doctor's letters
annually
guideline
Continuous glucose monitoring (real-time or flash)
Glucose sensor data
worn continuously, as the person's glucose monitoring
guideline
Kidney tests (eGFR and urine albumin:creatinine ratio)
Repeated lab results
annually, with cardiovascular risk assessment
guideline
HbA1c test
Repeated lab results
every 3 to 6 months
guideline

What sharing it is worth

$93

per licence for a complete story and one year of these records, $87 to $1,067

Value your own data

Your health story$23how
Doctor's lettersx1$3.49how
Glucose sensor datax1$3.43how
Repeated lab resultsx4$0.73how
Richness premium (4 kinds of data linked)x3how

A benchmark from published prices, not a promise: contributors earn a share each time a licence includes their data. How the benchmark works · What health data sells for

Share your story about type 1 diabetes All conditions

Type 1 diabetes

What research knows about type 1 diabetes comes from people who live with it. Here is how many do, what records they usually have, and what sharing yours is worth.

Living with it

8.4 million

Individuals worldwide with type 1 diabetes, 2021

source

New diagnoses

One every 63 seconds

500,000 a year, worldwide

source

How rare

Common

about 11 in 10,000 people

source source source

What patients usually have

The records behind type 1 diabetes

Annual review of self-care and needs
Doctor's letters
annually
guideline
Continuous glucose monitoring (real-time or flash)
Glucose sensor data
worn continuously, as the person's glucose monitoring
guideline
Kidney tests (eGFR and urine albumin:creatinine ratio)
Repeated lab results
annually, with cardiovascular risk assessment
guideline
HbA1c test
Repeated lab results
every 3 to 6 months
guideline

What sharing it is worth

$93

per licence for a complete story and one year of these records, $87 to $1,067

Value your own data

Your health story$23how
Doctor's lettersx1$3.49how
Glucose sensor datax1$3.43how
Repeated lab resultsx4$0.73how
Richness premium (4 kinds of data linked)x3how

A benchmark from published prices, not a promise: contributors earn a share each time a licence includes their data. How the benchmark works · What health data sells for

Share your story about type 1 diabetes All conditions