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Conditions/Cancer

Thyroid cancer

What research knows about thyroid cancer comes from people who live with it. Here is how many do, what records they usually have, and what sharing yours is worth.

Living with it

2 million

People with thyroid cancer worldwide, 2021

source

New diagnoses

One every 33 seconds

959,281 a year, worldwide

source

How rare

Rare

about 2.5 in 10,000 people

sourcesourcesource

What patients usually have

The records behind thyroid cancer

  • Neck ultrasound after surgery without radioactive iodine

    Scan reports

    once at 6 to 12 months, then annual clinical follow-up for up to 5 years

    guideline
  • Thyroglobulin and thyroglobulin antibody blood tests

    Repeated lab results

    every 3 to 6 months for 2 years after RAI, then every 6 to 12 months

    guideline
  • Fine-needle aspiration cytology (FNAC)

    Pathology reports

    at diagnosis, repeated for inadequate samples

    guideline
  • Thyroid ultrasound with graded appearance

    Scan reports

    at investigation of a thyroid nodule

    guideline
  • Thyroid hormone (levothyroxine) prescription at TSH-suppressing dose

    Medication history

    continuous; TSH-suppressing dose until the 9 to 12 month review, then a lower target, for life if response is excellent

    guideline

What sharing it is worth

$298

per licence for a complete story and one year of these records, $259 to $4,256

Value your own data
  • Your health story$23how
  • Scan reportsx2$4.86how
  • Repeated lab resultsx3$0.58how
  • Pathology reportsx1$3.49how
  • Medication historyx1$2.33how
  • Rarity premium (rare)x2.88how
  • Richness premium (5 kinds of data linked)x3how

A benchmark from published prices, not a promise: contributors earn a share each time a licence includes their data. How the benchmark works · What health data sells for

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