Sjögren's syndrome
What research knows about Sjögren's syndrome comes from people who live with it. Here is how many do, what records they usually have, and what sharing yours is worth.
Living with it
60.82 cases per 100 000 inhabitants
Pooled prevalence of primary Sjögren's syndrome
sourceWhat patients usually have
The records behind Sjögren's syndrome
Baseline blood tests for associated conditions (thyroid, liver, TTG, immunoglobulins, vitamin D and others)
at baseline, and repeated as clinically indicated
guidelineHydroxychloroquine prescription
a trial of 6 to 12 months
guidelineMinor labial salivary gland biopsy
at diagnosis, when clinical and serological features are not enough
guidelineSalivary gland ultrasound
at diagnosis
guideline
What sharing it is worth
$96
per licence for a complete story and one year of these records, $96 to $1,224
- Your health story$23how
- Lab resultsx1$0.24how
- Medication historyx1$2.33how
- Pathology reportsx1$3.49how
- Scan reportsx1$2.79how
- Richness premium (5 kinds of data linked)x3how
A benchmark from published prices, not a promise: contributors earn a share each time a licence includes their data. How the benchmark works · What health data sells for