Sarcoidosis

What research knows about sarcoidosis comes from people who live with it. Here is how many do, what records they usually have, and what sharing yours is worth.

Living with it

160 per 100 000

Prevalence of sarcoidosis, Sweden, 2013

source

New diagnoses

11.5 per 100 000 per year

Incidence of sarcoidosis, Sweden, 2003 to 2012

source

How rare

Common

about 16 in 10,000 people

source source

What patients usually have

The records behind sarcoidosis

Baseline electrocardiogram (ECG)
ECG
at baseline
guideline
EBUS-guided lymph node sampling (tissue for histology)
Pathology reports
once, when tissue sampling is needed for diagnosis
guideline
Baseline eye examination
Doctor's letters
at baseline
guideline
Baseline serum calcium test
Lab results
at baseline
guideline
Baseline serum creatinine test
Lab results
at baseline
guideline

What sharing it is worth

$98

per licence for a complete story and one year of these records, $98 to $1,234

Value your own data

Your health story$23how
ECGx1$1.86how
Pathology reportsx1$3.49how
Doctor's lettersx1$3.49how
Lab resultsx2$0.42how
Richness premium (4 kinds of data linked)x3how

A benchmark from published prices, not a promise: contributors earn a share each time a licence includes their data. How the benchmark works · What health data sells for

Share your story about sarcoidosis All conditions

Sarcoidosis

What research knows about sarcoidosis comes from people who live with it. Here is how many do, what records they usually have, and what sharing yours is worth.

Living with it

160 per 100 000

Prevalence of sarcoidosis, Sweden, 2013

source

New diagnoses

11.5 per 100 000 per year

Incidence of sarcoidosis, Sweden, 2003 to 2012

source

How rare

Common

about 16 in 10,000 people

source source

What patients usually have

The records behind sarcoidosis

Baseline electrocardiogram (ECG)
ECG
at baseline
guideline
EBUS-guided lymph node sampling (tissue for histology)
Pathology reports
once, when tissue sampling is needed for diagnosis
guideline
Baseline eye examination
Doctor's letters
at baseline
guideline
Baseline serum calcium test
Lab results
at baseline
guideline
Baseline serum creatinine test
Lab results
at baseline
guideline

What sharing it is worth

$98

per licence for a complete story and one year of these records, $98 to $1,234

Value your own data

Your health story$23how
ECGx1$1.86how
Pathology reportsx1$3.49how
Doctor's lettersx1$3.49how
Lab resultsx2$0.42how
Richness premium (4 kinds of data linked)x3how

A benchmark from published prices, not a promise: contributors earn a share each time a licence includes their data. How the benchmark works · What health data sells for

Share your story about sarcoidosis All conditions