Pulmonary fibrosis
What research knows about pulmonary fibrosis comes from people who live with it. Here is how many do, what records they usually have, and what sharing yours is worth.
Living with it
4.3 million
People with interstitial lung disease and pulmonary sarcoidosis worldwide, 2021
sourceWhat patients usually have
The records behind pulmonary fibrosis
Specialist follow-up review
every 3 months (rapid progression), 6 months (steady progression), or annually (stable after 1 year)
guidelineCT of the thorax with high-resolution images
at diagnosis
guidelineBronchoalveolar lavage, transbronchial biopsy or surgical lung biopsy
once, only if the diagnosis is not confident
guidelineLung function tests (spirometry and gas transfer)
at diagnosis, 6 months and 12 months
guideline
What sharing it is worth
$116
per licence for a complete story and one year of these records, $116 to $1,459
- Your health story$23how
- Doctor's lettersx3$8.40how
- Scan reportsx1$2.79how
- Pathology reportsx1$3.49how
- Repeated lab resultsx3$0.58how
- Richness premium (4 kinds of data linked)x3how
A benchmark from published prices, not a promise: contributors earn a share each time a licence includes their data. How the benchmark works · What health data sells for