Parkinson's disease

What research knows about Parkinson's disease comes from people who live with it. Here is how many do, what records they usually have, and what sharing yours is worth.

Living with it

8.5 million

People with Parkinson disease, worldwide

source

New diagnoses

One every 6 minutes

90,000 a year, US

source

How rare

Common

about 11 in 10,000 people

source source source

What patients usually have

The records behind Parkinson's disease

123I-FP-CIT SPECT (DaTscan)
Scan reports
once, when essential tremor cannot be told from parkinsonism
guideline
Structural MRI (not for diagnosis; for differential diagnosis)
Scan reports
only when other parkinsonian syndromes are suspected
guideline
Specialist review of diagnosis
Doctor's letters
regular intervals of 6 to 12 months
guideline

What sharing it is worth

$80

per licence for a complete story and one year of these records, $80 to $940

Value your own data

Your health story$23how
Scan reportsx2$4.86how
Doctor's lettersx2$6.07how
Richness premium (3 kinds of data linked)x2.33how

A benchmark from published prices, not a promise: contributors earn a share each time a licence includes their data. How the benchmark works · What health data sells for

Share your story about Parkinson's disease All conditions

Parkinson's disease

What research knows about Parkinson's disease comes from people who live with it. Here is how many do, what records they usually have, and what sharing yours is worth.

Living with it

8.5 million

People with Parkinson disease, worldwide

source

New diagnoses

One every 6 minutes

90,000 a year, US

source

How rare

Common

about 11 in 10,000 people

source source source

What patients usually have

The records behind Parkinson's disease

123I-FP-CIT SPECT (DaTscan)
Scan reports
once, when essential tremor cannot be told from parkinsonism
guideline
Structural MRI (not for diagnosis; for differential diagnosis)
Scan reports
only when other parkinsonian syndromes are suspected
guideline
Specialist review of diagnosis
Doctor's letters
regular intervals of 6 to 12 months
guideline

What sharing it is worth

$80

per licence for a complete story and one year of these records, $80 to $940

Value your own data

Your health story$23how
Scan reportsx2$4.86how
Doctor's lettersx2$6.07how
Richness premium (3 kinds of data linked)x2.33how

A benchmark from published prices, not a promise: contributors earn a share each time a licence includes their data. How the benchmark works · What health data sells for

Share your story about Parkinson's disease All conditions