Narcolepsy
What research knows about narcolepsy comes from people who live with it. Here is how many do, what records they usually have, and what sharing yours is worth.
Living with it
from 1.05 to 79.40 per 100,000 population
Range of published narcolepsy prevalence estimates
sourceNew diagnoses
from 0.06 to 6.56 per 100,000 person-years
Range of published narcolepsy incidence estimates
sourceWhat patients usually have
The records behind narcolepsy
Actigraphy for 2 weeks before testing
2 weeks before the MSLT, when available
guidelineMultiple Sleep Latency Test (MSLT) report
once at diagnosis, 5 nap trials on one day
guidelineOvernight facility-based polysomnography before the MSLT
once, the night before the MSLT
guidelineSleep diary for 2 weeks before testing
2 weeks before the MSLT
guidelineUrine drug screen on the MSLT day
when indicated, with the MSLT
guideline
What sharing it is worth
$284
per licence for a complete story and one year of these records, $240 to $4,000
- Your health story$23how
- Wearable datax1$1.00how
- Doctor's lettersx2$6.07how
- Symptom diaryx1$2.33how
- Lab resultsx1$0.24how
- Rarity premium (rare)x2.88how
- Richness premium (5 kinds of data linked)x3how
A benchmark from published prices, not a promise: contributors earn a share each time a licence includes their data. How the benchmark works · What health data sells for