Myasthenia gravis

What research knows about myasthenia gravis comes from people who live with it. Here is how many do, what records they usually have, and what sharing yours is worth.

Living with it

12.4 people ... per 100,000 population

Pooled prevalence of myasthenia gravis

source

New diagnoses

5.3 per million person-years

Pooled incidence of myasthenia gravis

source

How rare

Rare

about 1.2 in 10,000 people

source source

What patients usually have

The records behind myasthenia gravis

Anti-acetylcholine receptor (AChR) antibody blood test
Lab results
at diagnosis
guideline
MG-ADL patient-reported scale
Health questionnaires
at initial evaluation and during follow-up
guideline
Blood count and liver function monitoring on azathioprine
Repeated lab results
regular, during dose escalation
guideline
Chest CT or MRI for thymoma
Scan reports
once, in AChR antibody positive patients
guideline

What sharing it is worth

$245

per licence for a complete story and one year of these records, $213 to $3,500

Value your own data

Your health story$23how
Lab resultsx1$0.24how
Health questionnairesx1$1.86how
Repeated lab resultsx1$0.24how
Scan reportsx1$2.79how
Rarity premium (rare)x2.88how
Richness premium (4 kinds of data linked)x3how

A benchmark from published prices, not a promise: contributors earn a share each time a licence includes their data. How the benchmark works · What health data sells for

Share your story about myasthenia gravis All conditions

Myasthenia gravis

What research knows about myasthenia gravis comes from people who live with it. Here is how many do, what records they usually have, and what sharing yours is worth.

Living with it

12.4 people ... per 100,000 population

Pooled prevalence of myasthenia gravis

source

New diagnoses

5.3 per million person-years

Pooled incidence of myasthenia gravis

source

How rare

Rare

about 1.2 in 10,000 people

source source

What patients usually have

The records behind myasthenia gravis

Anti-acetylcholine receptor (AChR) antibody blood test
Lab results
at diagnosis
guideline
MG-ADL patient-reported scale
Health questionnaires
at initial evaluation and during follow-up
guideline
Blood count and liver function monitoring on azathioprine
Repeated lab results
regular, during dose escalation
guideline
Chest CT or MRI for thymoma
Scan reports
once, in AChR antibody positive patients
guideline

What sharing it is worth

$245

per licence for a complete story and one year of these records, $213 to $3,500

Value your own data

Your health story$23how
Lab resultsx1$0.24how
Health questionnairesx1$1.86how
Repeated lab resultsx1$0.24how
Scan reportsx1$2.79how
Rarity premium (rare)x2.88how
Richness premium (4 kinds of data linked)x3how

A benchmark from published prices, not a promise: contributors earn a share each time a licence includes their data. How the benchmark works · What health data sells for

Share your story about myasthenia gravis All conditions