Multiple sclerosis

What research knows about multiple sclerosis comes from people who live with it. Here is how many do, what records they usually have, and what sharing yours is worth.

Living with it

2.8 million

People living with multiple sclerosis, worldwide

source

New diagnoses

2.1 per 100,000 persons/year

Pooled incidence rate of multiple sclerosis across 75 reporting countries

source

How rare

Rare

about 3.5 in 10,000 people

source source source

What patients usually have

The records behind multiple sclerosis

Comprehensive MS care review
Doctor's letters
at least once a year
guideline
MRI of the brain and spinal cord
Scan reports
at diagnosis
guideline
Review of spasticity medicines
Medication history
at least annually once the optimal dose has been reached
guideline

What sharing it is worth

$275

per licence for a complete story and one year of these records, $239 to $3,984

Value your own data

Your health story$23how
Doctor's lettersx1$3.49how
Scan reportsx1$2.79how
Medication historyx1$2.33how
Rarity premium (rare)x2.88how
Richness premium (4 kinds of data linked)x3how

A benchmark from published prices, not a promise: contributors earn a share each time a licence includes their data. How the benchmark works · What health data sells for

Share your story about multiple sclerosis All conditions

Multiple sclerosis

What research knows about multiple sclerosis comes from people who live with it. Here is how many do, what records they usually have, and what sharing yours is worth.

Living with it

2.8 million

People living with multiple sclerosis, worldwide

source

New diagnoses

2.1 per 100,000 persons/year

Pooled incidence rate of multiple sclerosis across 75 reporting countries

source

How rare

Rare

about 3.5 in 10,000 people

source source source

What patients usually have

The records behind multiple sclerosis

Comprehensive MS care review
Doctor's letters
at least once a year
guideline
MRI of the brain and spinal cord
Scan reports
at diagnosis
guideline
Review of spasticity medicines
Medication history
at least annually once the optimal dose has been reached
guideline

What sharing it is worth

$275

per licence for a complete story and one year of these records, $239 to $3,984

Value your own data

Your health story$23how
Doctor's lettersx1$3.49how
Scan reportsx1$2.79how
Medication historyx1$2.33how
Rarity premium (rare)x2.88how
Richness premium (4 kinds of data linked)x3how

A benchmark from published prices, not a promise: contributors earn a share each time a licence includes their data. How the benchmark works · What health data sells for

Share your story about multiple sclerosis All conditions