Multiple myeloma
What research knows about multiple myeloma comes from people who live with it. Here is how many do, what records they usually have, and what sharing yours is worth.
Living with it
554,606
People alive within 5 years of a multiple myeloma diagnosis, worldwide, 2024
sourceWhat patients usually have
The records behind multiple myeloma
Bone marrow aspirate and trephine biopsy to confirm myeloma
once, at diagnosis
guidelineMonitoring tests for myeloma after treatment (blood count, kidney function, bone profile, immunoglobulins, protein electrophoresis)
at least every 3 months
guidelineWhole-body MRI as first-line imaging at diagnosis
once, at diagnosis
guideline
What sharing it is worth
$259
per licence for a complete story and one year of these records, $223 to $3,709
- Your health story$23how
- Pathology reportsx1$3.49how
- Repeated lab resultsx4$0.47how
- Scan reportsx1$2.79how
- Rarity premium (very rare)x2.88how
- Richness premium (4 kinds of data linked)x3how
A benchmark from published prices, not a promise: contributors earn a share each time a licence includes their data. How the benchmark works · What health data sells for
Guides
Read more about multiple myeloma
Already paid elsewhere
What people with multiple myeloma have been paid for sharing
Published payments for a research interview or survey about it. What patients are paid for research