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Conditions/Cancer

Melanoma

What research knows about melanoma comes from people who live with it. Here is how many do, what records they usually have, and what sharing yours is worth.

Living with it

1.3 million

People alive within 5 years of a melanoma of the skin diagnosis, worldwide, 2024

source

New diagnoses

One every 2 minutes

337,969 a year, worldwide

source

How rare

Rare

about 1.6 in 10,000 people

sourcesourcesource

What patients usually have

The records behind melanoma

  • BRAF analysis of the melanoma tissue sample

    Pathology reports

    at presentation, for stage IIB to IV (considered for stage IIA, not for IA or IB)

    guideline
  • Sentinel lymph node biopsy (histopathology) for staging melanoma

    Pathology reports

    once, at staging

    guideline
  • Whole-body and brain contrast-enhanced CT during follow-up of stage IIC melanoma

    Scan reports

    2 scans each year in years 1 and 2, then 2 in year 3, then 1 a year in years 4 and 5

    guideline

What sharing it is worth

$230

per licence for a complete story and one year of these records, $199 to $3,064

Value your own data
  • Your health story$23how
  • Pathology reportsx2$6.07how
  • Scan reportsx2$4.86how
  • Rarity premium (rare)x2.88how
  • Richness premium (3 kinds of data linked)x2.33how

A benchmark from published prices, not a promise: contributors earn a share each time a licence includes their data. How the benchmark works · What health data sells for

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