Macular degeneration
What research knows about macular degeneration comes from people who live with it. Here is how many do, what records they usually have, and what sharing yours is worth.
Living with it
196 million
People with age-related macular degeneration worldwide, projected for 2020
sourceNew diagnoses
1.59 ... per 100 person-years
Pooled annual incidence of early age-related macular degeneration
sourceWhat patients usually have
The records behind macular degeneration
Intravitreal anti-VEGF injection treatment
repeated injections (regimen not stated)
guidelineFundus fluorescein angiography (FFA)
at diagnosis, if OCT does not exclude neovascular disease
guidelineOptical coherence tomography (OCT) for suspected wet AMD
at diagnosis
guidelineOngoing OCT monitoring of both eyes in wet AMD
ongoing (interval not stated in the guideline)
guideline
What sharing it is worth
$71
per licence for a complete story and one year of these records, $71 to $837
- Your health story$23how
- Medication historyx1$2.33how
- Scan reportsx2$4.86how
- Scan imagesx1no price yethow
- Richness premium (3 kinds of data linked)x2.33how
A benchmark from published prices, not a promise: contributors earn a share each time a licence includes their data. How the benchmark works · What health data sells for