Leukaemia

What research knows about leukaemia comes from people who live with it. Here is how many do, what records they usually have, and what sharing yours is worth.

Living with it

1.5 million

People alive within 5 years of a leukaemia diagnosis, worldwide, 2024

source

New diagnoses

One every 64 seconds

495,113 a year, worldwide

source

How rare

Rare

about 1.9 in 10,000 people

source source source

What patients usually have

The records behind leukaemia

Blood count and physical examination while early-stage chronic lymphocytic leukaemia is watched
Repeated lab results
3- to 12-monthly
guideline
Very urgent full blood count when leukaemia is suspected in an adult
Lab results
at suspected diagnosis
guideline
Integrated diagnostic report from a specialist haematological malignancy diagnostic service (SIHMDS)
Pathology reports
at diagnosis (all new diagnoses)
guideline

What sharing it is worth

$185

per licence for a complete story and one year of these records, $161 to $2,410

Value your own data

Your health story$23how
Repeated lab resultsx3$0.58how
Lab resultsx1$0.24how
Pathology reportsx1$3.49how
Rarity premium (rare)x2.88how
Richness premium (3 kinds of data linked)x2.33how

A benchmark from published prices, not a promise: contributors earn a share each time a licence includes their data. How the benchmark works · What health data sells for

Share your story about leukaemia All conditions

Leukaemia

What research knows about leukaemia comes from people who live with it. Here is how many do, what records they usually have, and what sharing yours is worth.

Living with it

1.5 million

People alive within 5 years of a leukaemia diagnosis, worldwide, 2024

source

New diagnoses

One every 64 seconds

495,113 a year, worldwide

source

How rare

Rare

about 1.9 in 10,000 people

source source source

What patients usually have

The records behind leukaemia

Blood count and physical examination while early-stage chronic lymphocytic leukaemia is watched
Repeated lab results
3- to 12-monthly
guideline
Very urgent full blood count when leukaemia is suspected in an adult
Lab results
at suspected diagnosis
guideline
Integrated diagnostic report from a specialist haematological malignancy diagnostic service (SIHMDS)
Pathology reports
at diagnosis (all new diagnoses)
guideline

What sharing it is worth

$185

per licence for a complete story and one year of these records, $161 to $2,410

Value your own data

Your health story$23how
Repeated lab resultsx3$0.58how
Lab resultsx1$0.24how
Pathology reportsx1$3.49how
Rarity premium (rare)x2.88how
Richness premium (3 kinds of data linked)x2.33how

A benchmark from published prices, not a promise: contributors earn a share each time a licence includes their data. How the benchmark works · What health data sells for

Share your story about leukaemia All conditions