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Conditions/Infection

Hepatitis C

What research knows about hepatitis C comes from people who live with it. Here is how many do, what records they usually have, and what sharing yours is worth.

Living with it

47 million

People living with chronic hepatitis C virus infection worldwide

source

New diagnoses

One every 35 seconds

900,000 a year, worldwide

source

How rare

Common

about 59 in 10,000 people

sourcesourcesource

What patients usually have

The records behind hepatitis C

  • Direct-acting antiviral course (glecaprevir/pibrentasvir or sofosbuvir/velpatasvir)

    Medication history

    one course of 8 or 12 weeks

    guideline
  • Liver ultrasound surveillance for liver cancer after treatment, in cirrhosis

    Scan reports

    every 6 months after treatment completion

    guideline
  • Quantitative HCV RNA (with HIV and HBsAg tests) before treatment

    Lab results

    once, before treatment

    guideline
  • HCV RNA and aminotransferase test to confirm cure (SVR)

    Lab results

    once, 12 or more weeks after treatment ends

    guideline

What sharing it is worth

$93

per licence for a complete story and one year of these records, $93 to $1,170

Value your own data
  • Your health story$23how
  • Medication historyx1$2.33how
  • Scan reportsx2$4.86how
  • Lab resultsx2$0.42how
  • Richness premium (4 kinds of data linked)x3how

A benchmark from published prices, not a promise: contributors earn a share each time a licence includes their data. How the benchmark works · What health data sells for

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