Fibromyalgia

What research knows about fibromyalgia comes from people who live with it. Here is how many do, what records they usually have, and what sharing yours is worth.

Living with it

between 0.2 and 6.6%

Prevalence of fibromyalgia in the general population, range across studies

source

New diagnoses

33.3

Annual incidence of recorded fibromyalgia diagnoses in UK primary care, 2001 to 2013

source

How rare

Common

about 340 in 10,000 people

source source

What patients usually have

The records behind fibromyalgia

Diagnostic checklist (modified ACR 2010 criteria, no tender point exam needed)
Doctor's letters
at diagnosis
guideline
Selected laboratory tests to exclude another disease
Lab results
at diagnostic work-up
guideline
Fibromyalgia survey questionnaire (symptom severity and widespread pain index)
Health questionnaires
at assessment
guideline

What sharing it is worth

$87

per licence for a complete story and one year of these records, $87 to $1,099

Value your own data

Your health story$23how
Doctor's lettersx1$3.49how
Lab resultsx1$0.24how
Health questionnairesx1$1.86how
Richness premium (4 kinds of data linked)x3how

A benchmark from published prices, not a promise: contributors earn a share each time a licence includes their data. How the benchmark works · What health data sells for

Share your story about fibromyalgia All conditions

Fibromyalgia

What research knows about fibromyalgia comes from people who live with it. Here is how many do, what records they usually have, and what sharing yours is worth.

Living with it

between 0.2 and 6.6%

Prevalence of fibromyalgia in the general population, range across studies

source

New diagnoses

33.3

Annual incidence of recorded fibromyalgia diagnoses in UK primary care, 2001 to 2013

source

How rare

Common

about 340 in 10,000 people

source source

What patients usually have

The records behind fibromyalgia

Diagnostic checklist (modified ACR 2010 criteria, no tender point exam needed)
Doctor's letters
at diagnosis
guideline
Selected laboratory tests to exclude another disease
Lab results
at diagnostic work-up
guideline
Fibromyalgia survey questionnaire (symptom severity and widespread pain index)
Health questionnaires
at assessment
guideline

What sharing it is worth

$87

per licence for a complete story and one year of these records, $87 to $1,099

Value your own data

Your health story$23how
Doctor's lettersx1$3.49how
Lab resultsx1$0.24how
Health questionnairesx1$1.86how
Richness premium (4 kinds of data linked)x3how

A benchmark from published prices, not a promise: contributors earn a share each time a licence includes their data. How the benchmark works · What health data sells for

Share your story about fibromyalgia All conditions