Endometriosis

What research knows about endometriosis comes from people who live with it. Here is how many do, what records they usually have, and what sharing yours is worth.

Living with it

190 million

Reproductive-age women with endometriosis worldwide

source

New diagnoses

One every 9.1 seconds

3.4 million a year, worldwide

source

How rare

Common

about 240 in 10,000 people

source source source

What patients usually have

The records behind endometriosis

Diagnostic laparoscopy report
Pathology reports Doctor's letters
if imaging is normal but endometriosis is suspected
guideline
Specialist ultrasound or pelvic MRI for deep endometriosis
Scan reports
when deep endometriosis is suspected
guideline
Transvaginal ultrasound scan
Scan reports
at suspected diagnosis
guideline

What sharing it is worth

$74

per licence for a complete story and one year of these records, $74 to $869

Value your own data

Your health story$23how
Pathology reportsx1$3.49how
Scan reportsx2$4.86how
Richness premium (3 kinds of data linked)x2.33how

A benchmark from published prices, not a promise: contributors earn a share each time a licence includes their data. How the benchmark works · What health data sells for

Share your story about endometriosis All conditions

Endometriosis

What research knows about endometriosis comes from people who live with it. Here is how many do, what records they usually have, and what sharing yours is worth.

Living with it

190 million

Reproductive-age women with endometriosis worldwide

source

New diagnoses

One every 9.1 seconds

3.4 million a year, worldwide

source

How rare

Common

about 240 in 10,000 people

source source source

What patients usually have

The records behind endometriosis

Diagnostic laparoscopy report
Pathology reports Doctor's letters
if imaging is normal but endometriosis is suspected
guideline
Specialist ultrasound or pelvic MRI for deep endometriosis
Scan reports
when deep endometriosis is suspected
guideline
Transvaginal ultrasound scan
Scan reports
at suspected diagnosis
guideline

What sharing it is worth

$74

per licence for a complete story and one year of these records, $74 to $869

Value your own data

Your health story$23how
Pathology reportsx1$3.49how
Scan reportsx2$4.86how
Richness premium (3 kinds of data linked)x2.33how

A benchmark from published prices, not a promise: contributors earn a share each time a licence includes their data. How the benchmark works · What health data sells for

Share your story about endometriosis All conditions