Eating disorders

What research knows about eating disorders comes from people who live with it. Here is how many do, what records they usually have, and what sharing yours is worth.

Living with it

18 million

People who experienced an eating disorder in 2023, worldwide

source

New diagnoses

124.4 per 100,000

Age-standardised incidence rate of eating disorders (anorexia and bulimia nervosa) worldwide, 2021

source

How rare

Common

about 23 in 10,000 people

source source source

What patients usually have

The records behind eating disorders

Annual physical and mental health review with relevant blood tests (anorexia nervosa not in treatment)
Repeated lab results
at least annually
guideline
Bone mineral density scan in anorexia nervosa
Scan reports
after 1 year of underweight in children and young people, after 2 years in adults
guideline
ECG monitoring while taking medication that could affect the heart
ECG
while on medication that could compromise cardiac functioning (no interval given)
guideline
Fluid and electrolyte assessment in people who vomit or misuse laxatives or diuretics
Lab results
when compensatory behaviours are suspected (no interval given)
guideline
Self-monitoring record of dietary intake and thoughts during CBT-ED for anorexia nervosa
Symptom diary
throughout CBT-ED (up to 40 sessions over 40 weeks)
guideline

What sharing it is worth

$92

per licence for a complete story and one year of these records, $92 to $1,163

Value your own data

Your health story$23how
Repeated lab resultsx1$0.24how
Scan reportsx1$2.79how
ECGx1$1.86how
Lab resultsx1$0.24how
Symptom diaryx1$2.33how
Richness premium (5 kinds of data linked)x3how

A benchmark from published prices, not a promise: contributors earn a share each time a licence includes their data. How the benchmark works · What health data sells for

Share your story about eating disorders All conditions

Eating disorders

What research knows about eating disorders comes from people who live with it. Here is how many do, what records they usually have, and what sharing yours is worth.

Living with it

18 million

People who experienced an eating disorder in 2023, worldwide

source

New diagnoses

124.4 per 100,000

Age-standardised incidence rate of eating disorders (anorexia and bulimia nervosa) worldwide, 2021

source

How rare

Common

about 23 in 10,000 people

source source source

What patients usually have

The records behind eating disorders

Annual physical and mental health review with relevant blood tests (anorexia nervosa not in treatment)
Repeated lab results
at least annually
guideline
Bone mineral density scan in anorexia nervosa
Scan reports
after 1 year of underweight in children and young people, after 2 years in adults
guideline
ECG monitoring while taking medication that could affect the heart
ECG
while on medication that could compromise cardiac functioning (no interval given)
guideline
Fluid and electrolyte assessment in people who vomit or misuse laxatives or diuretics
Lab results
when compensatory behaviours are suspected (no interval given)
guideline
Self-monitoring record of dietary intake and thoughts during CBT-ED for anorexia nervosa
Symptom diary
throughout CBT-ED (up to 40 sessions over 40 weeks)
guideline

What sharing it is worth

$92

per licence for a complete story and one year of these records, $92 to $1,163

Value your own data

Your health story$23how
Repeated lab resultsx1$0.24how
Scan reportsx1$2.79how
ECGx1$1.86how
Lab resultsx1$0.24how
Symptom diaryx1$2.33how
Richness premium (5 kinds of data linked)x3how

A benchmark from published prices, not a promise: contributors earn a share each time a licence includes their data. How the benchmark works · What health data sells for