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Conditions/Digestive

Crohn's disease

What research knows about Crohn's disease comes from people who live with it. Here is how many do, what records they usually have, and what sharing yours is worth.

Living with it

6.8 million

People living with inflammatory bowel disease (Crohn's disease and ulcerative colitis together) worldwide, 2017

source

New diagnoses

One every 84 seconds

375,140 a year, worldwide

source

How rare

Common

about 8.5 in 10,000 people

sourcesourcesource

What patients usually have

The records behind Crohn's disease

  • Surveillance colonoscopy

    Pathology reports

    every 5 years (low risk), 3 years (intermediate risk), 1 year (high risk)

    guideline
  • Review of infliximab or adalimumab treatment

    Medication history

    at least every 12 months

    guideline
  • Blood monitoring for azathioprine, mercaptopurine or methotrexate

    Repeated lab results

    as advised in the BNF

    guideline

What sharing it is worth

$88

per licence for a complete story and one year of these records, $88 to $1,117

Value your own data
  • Your health story$23how
  • Pathology reportsx1$3.49how
  • Medication historyx1$2.33how
  • Repeated lab resultsx1$0.24how
  • Richness premium (4 kinds of data linked)x3how

A benchmark from published prices, not a promise: contributors earn a share each time a licence includes their data. How the benchmark works · What health data sells for

Already paid elsewhere

What people with Crohn's disease have been paid for sharing

Published payments for a research interview or survey about it. What patients are paid for research

  • Crohn's disease, Ulcerative colitis

    $210

    Crohn's disease, microscopic colitis and ulcerative colitis patients, 90-minute phone interview plus confirmation of diagnosis

    Rat Race Rebellion, 2025source

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