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Conditions/Mental health

Autism

What research knows about autism comes from people who live with it. Here is how many do, what records they usually have, and what sharing yours is worth.

Living with it

61.8 million

People on the autism spectrum worldwide in 2021

source

New diagnoses

No published yearly count in the evidence yet.

How rare

Common

about 77 in 10,000 people

sourcesourcesource

What patients usually have

The records behind autism

  • Written report of the autism diagnostic assessment (children and young people), shared with the GP

    Doctor's letters

    once, after the diagnostic assessment

    guideline
  • Antipsychotic prescription for behaviour that challenges, with an early review

    Medication history

    review after 3 to 4 weeks, stop at 6 weeks if no response

    guideline
  • Autism-Spectrum Quotient 10-item questionnaire (AQ-10) for adults with possible autism

    Health questionnaires

    once, when autism is suspected

    guideline
  • Care plan based on the comprehensive autism assessment (adults)

    Doctor's letters

    after the comprehensive assessment

    guideline

What sharing it is worth

$101

per licence for a complete story and one year of these records, $101 to $1,286

Value your own data
  • Your health story$23how
  • Doctor's lettersx2$6.07how
  • Medication historyx1$2.33how
  • Health questionnairesx1$1.86how
  • Richness premium (4 kinds of data linked)x3how

A benchmark from published prices, not a promise: contributors earn a share each time a licence includes their data. How the benchmark works · What health data sells for

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