Ankylosing spondylitis

What research knows about ankylosing spondylitis comes from people who live with it. Here is how many do, what records they usually have, and what sharing yours is worth.

Living with it

4.6 million

Expected number of people with ankylosing spondylitis in Asia

source

New diagnoses

3.1 per 100,000

Age- and sex-adjusted incidence of ankylosing spondylitis in adults, Olmsted County, Minnesota, 1980 to 2009

source

How rare

Common

about 24 in 10,000 people

source source

What patients usually have

The records behind ankylosing spondylitis

BASDAI disease activity questionnaire and spinal pain VAS
Health questionnaires
when deciding on biological treatment
guideline
Osteoporosis assessment (DEXA bone density scan)
Scan reports
every 2 years
guideline
HLA-B27 blood test
Lab results
once, when assessing for referral
guideline
MRI of spine and sacroiliac joints (inflammatory back pain protocol)
Scan reports
when the X-ray is not diagnostic
guideline
Plain X-ray of the sacroiliac joints
Scan reports
at diagnosis
guideline

What sharing it is worth

$96

per licence for a complete story and one year of these records, $96 to $1,223

Value your own data

Your health story$23how
Health questionnairesx1$1.86how
Scan reportsx3$6.72how
Lab resultsx1$0.24how
Richness premium (4 kinds of data linked)x3how

A benchmark from published prices, not a promise: contributors earn a share each time a licence includes their data. How the benchmark works · What health data sells for

Share your story about ankylosing spondylitis All conditions

Ankylosing spondylitis

What research knows about ankylosing spondylitis comes from people who live with it. Here is how many do, what records they usually have, and what sharing yours is worth.

Living with it

4.6 million

Expected number of people with ankylosing spondylitis in Asia

source

New diagnoses

3.1 per 100,000

Age- and sex-adjusted incidence of ankylosing spondylitis in adults, Olmsted County, Minnesota, 1980 to 2009

source

How rare

Common

about 24 in 10,000 people

source source

What patients usually have

The records behind ankylosing spondylitis

BASDAI disease activity questionnaire and spinal pain VAS
Health questionnaires
when deciding on biological treatment
guideline
Osteoporosis assessment (DEXA bone density scan)
Scan reports
every 2 years
guideline
HLA-B27 blood test
Lab results
once, when assessing for referral
guideline
MRI of spine and sacroiliac joints (inflammatory back pain protocol)
Scan reports
when the X-ray is not diagnostic
guideline
Plain X-ray of the sacroiliac joints
Scan reports
at diagnosis
guideline

What sharing it is worth

$96

per licence for a complete story and one year of these records, $96 to $1,223

Value your own data

Your health story$23how
Health questionnairesx1$1.86how
Scan reportsx3$6.72how
Lab resultsx1$0.24how
Richness premium (4 kinds of data linked)x3how

A benchmark from published prices, not a promise: contributors earn a share each time a licence includes their data. How the benchmark works · What health data sells for

Share your story about ankylosing spondylitis All conditions