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Conditions/Brain and nerves

Alzheimer's disease

What research knows about Alzheimer's disease comes from people who live with it. Here is how many do, what records they usually have, and what sharing yours is worth.

Living with it

57 million

People living with dementia, worldwide

source

New diagnoses

One every 3.2 seconds

10 million a year, worldwide

source

How rare

Common

about 71 in 10,000 people

sourcesourcesource

What patients usually have

The records behind Alzheimer's disease

  • Blood and urine tests to exclude reversible causes

    Lab results

    once, at assessment

    guideline
  • Brief cognitive test (for example 6CIT, Mini-Cog)

    Health questionnaires

    at assessment

    guideline
  • Structural brain imaging (MRI or CT)

    Scan reports

    once, at diagnosis

    guideline
  • Neuropsychological testing report

    Doctor's letters

    when diagnosis is unclear

    guideline

What sharing it is worth

$95

per licence for a complete story and one year of these records, $95 to $1,206

Value your own data
  • Your health story$23how
  • Lab resultsx1$0.24how
  • Health questionnairesx1$1.86how
  • Scan reportsx1$2.79how
  • Doctor's lettersx1$3.49how
  • Richness premium (5 kinds of data linked)x3how

A benchmark from published prices, not a promise: contributors earn a share each time a licence includes their data. How the benchmark works · What health data sells for

Already paid elsewhere

What people with Alzheimer's disease have been paid for sharing

Published payments for a research interview or survey about it. What patients are paid for research

  • Alzheimer's disease

    $60

    Alzheimer's disease patients over 65 and caregivers, 30-minute phone interview

    Rat Race Rebellion, 2025source

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