Alopecia areata
What research knows about alopecia areata comes from people who live with it. Here is how many do, what records they usually have, and what sharing yours is worth.
Living with it
0.10%
Lifetime prevalence of physician-diagnosed alopecia areata, general population worldwide
sourceNew diagnoses
No published yearly count in the evidence yet.
What patients usually have
The records behind alopecia areata
Skin biopsy in selected cases when clinical findings are inconclusive
only when inconclusive
guidelineBlood tests, thyroid values, ANA titre and vitamin D in alopecia areata
when clinically indicated
guidelineDermoscopic examination of the alopecic areas to monitor progress
at follow-up visits
guidelinePatient-reported scales for eyebrow, eyelash and nail involvement
not stated
guideline
What sharing it is worth
$97
per licence for a complete story and one year of these records, $97 to $1,233
- Your health story$23how
- Pathology reportsx1$3.49how
- Lab resultsx1$0.15how
- Doctor's lettersx1$3.49how
- Health questionnairesx1$1.86how
- Richness premium (4 kinds of data linked)x3how
A benchmark from published prices, not a promise: contributors earn a share each time a licence includes their data. How the benchmark works · What health data sells for
Already paid elsewhere
What people with alopecia areata have been paid for sharing
Published payments for a research interview or survey about it. What patients are paid for research
Alopecia areata
$150
Alopecia areata patients, 90-minute phone interview
Rat Race Rebellion, 2025source