Psoriasis: Your Treatment History Is Research Data

Every figure in this guide comes from a published source, linked where it appears and kept in CureCircle's evidence base with the source's own words. It is not medical advice. Read on 7 November 2026.

Most people with psoriasis know the cycle: a cream that helped for a while, a flare, a stronger cream, light therapy, perhaps a tablet or an injection. Which treatment worked, for how long, with which side effects, and what it did to sleep, work and confidence is recorded in pieces across prescriptions and clinic letters. The whole picture lives with the person who went through it, and that picture is what research on psoriasis treatment learns from.

How many people live with it

The WHO reported in 2016 that psoriasis affects approximately 100 million people worldwide. The Global Burden of Disease study put the age-standardised rates of prevalence, incidence and DALYs at 516, 62, and 44.4 per 100,000 in 2021: about 62 new diagnoses a year for every 100,000 people.

The records worth keeping

NICE's guideline on psoriasis describes the assessments and reviews that leave records:

• A severity score: in specialist care, a validated tool such as the Psoriasis Area and Severity Index (PASI), usually with a quality-of-life questionnaire beside it. A series of scores shows how each treatment changed things.
• An annual check for psoriatic arthritis: NICE asks clinicians to offer annual assessment for psoriatic arthritis to people with any type of psoriasis.
• A yearly review of strong steroid creams: at least annually for adults using potent or very potent corticosteroids. Your prescription history is the record of what you tried and when.
• A heart health check for people with severe psoriasis, every 5 years, or more frequently if indicated.

Photos of your skin over time, and your own notes on flares and triggers, show what no score does. If you do not have your clinic letters or scores, ask your dermatology service for a copy.

What sharing it is worth

CureCircle values every contribution with a public benchmark built from what health data has sold for. A complete psoriasis story with the records the guideline lists comes to about $93 per licence on the benchmark today, and about $105 per licence with four severity or quality-of-life questionnaires added. Every line and its source is on the psoriasis page.

A licence is not a one-off sale: the same de-identified story can be licensed to several research teams, and you earn a share each time.

People with psoriasis are also paid for their time directly: a published listing offered psoriasis and psoriatic arthritis patients $120 for a 60-minute phone interview. More examples are in how much patients get paid for research.

How to share it

You start by writing what you live with in your own words; a few quick questions follow, then an AI interviewer asks about the details only you know, and you rate every treatment you tried, from creams to light therapy to biologics. You can add clinic letters, prescriptions and photos of your skin, and the AI reads the documents into your own medical file. Before anything is shared, you read the de-identified summary and decide.

Start your story, or read what your health data is worth first.