Hypothyroidism: Your TSH Results and Experience of Treatment as Research Data

Every figure in this guide comes from a published source, linked where it appears and kept in CureCircle's evidence base with the source's own words. It is not medical advice. Read on 7 November 2026.

For most people with an underactive thyroid, a daily tablet and a yearly blood test are enough. For some, the tests look normal and they still feel tired, foggy or low. Why that happens, and what helps, is one of the open questions in thyroid care. The answer lies in years of TSH and T4 results joined to how the person actually felt on each dose, and only the person living with it can give the second half.

How many people live with it

A meta-analysis of European studies found that hypothyroidism, diagnosed and undiagnosed, affects 3.05% of people, with new cases at 226.2 per 100,000 a year.

The records worth keeping

NICE's guideline on thyroid disease describes the tests that leave records:

• A TSH blood test to diagnose it, measuring thyroid-stimulating hormone, and thyroid peroxidase antibodies once.
• TSH on treatment: every 3 months until the level has stabilised, then once a year.
• Free T4 as well for adults who continue to have symptoms after starting levothyroxine.
• Yearly checks for some people with untreated subclinical hypothyroidism.

Years of TSH results with the dose you were taking at each one, and your own notes on symptoms, make a strong record. Many patient apps show your past results. If you do not have them, ask your practice for a copy.

What sharing it is worth

CureCircle values every contribution with a public benchmark built from what health data has sold for. A complete hypothyroidism story with the records the guideline lists comes to about $40 per licence on the benchmark today. Lab results are among the least well-priced kinds of data on the benchmark, so this value may move as better prices are found; where the evidence is thinnest. Every line and its source is on the hypothyroidism page.

A licence is not a one-off sale: the same de-identified story can be licensed to several research teams, and you earn a share each time.

How to share it

You start by writing what you live with in your own words; a few quick questions follow, then an AI interviewer asks about the details only you know, and you rate every treatment you tried. You can add blood results and letters as PDFs or photos, and the AI reads them into your own medical file. Before anything is shared, you read the de-identified summary and decide.

Start your story, or read what your health data is worth first.