Hepatitis B: Years of Monitoring Are Research Data

Every figure in this guide comes from a published source, linked where it appears and kept in CureCircle's evidence base with the source's own words. It is not medical advice. Read on 7 November 2026.

Chronic hepatitis B is usually a lifelong companion: regular blood tests, a liver scan every year or every six months, sometimes a daily tablet, often for decades. Many people were infected at birth and found out years later. That long record of monitoring, and what living with it has meant for family, work and travel, is what research on hepatitis B treatment and care needs, and the person living with it holds it.

How many people live with it

The WHO "estimates that 240 million people were living with chronic hepatitis B infection in 2024, with 0.9 million new infections each year".

The records worth keeping

NICE's guideline on hepatitis B describes the monitoring that leaves records:

• Viral load and antigen tests on treatment: HBV DNA, HBsAg and HBeAg before starting tenofovir, 12, 24 and 48 weeks after starting treatment and then every 6 months.
• Blood tests for safety on treatment, including liver and kidney function and phosphate.
• A yearly liver stiffness scan (transient elastography) for adults who are not taking antiviral treatment.
• Liver cancer surveillance: 6-monthly ultrasound and alpha-fetoprotein testing for people with significant scarring.

Years of these results show how the infection and the liver changed. If you do not have them, ask your liver clinic for a copy.

What sharing it is worth

CureCircle values every contribution with a public benchmark built from what health data has sold for. A complete hepatitis B story with the records the guideline lists comes to about $71 per licence on the benchmark today. Every line and its source is on the hepatitis B page.

A licence is not a one-off sale: the same de-identified story can be licensed to several research teams, and you earn a share each time.

People with hepatitis B are also paid for their time directly: a published listing offered hepatitis B patients $90 for a 45-minute phone interview.

Private by design

Nothing that identifies you is shared: no names, no place finer than a country, no exact dates, and you read the de-identified summary before anything goes anywhere. You decide what to tell, and you can withdraw at any time. How de-identification works, and what it cannot promise.

Start your story, or read what your health data is worth first.