Coeliac Disease: Your Path to Diagnosis and Life Without Gluten as Research Data

Every figure in this guide comes from a published source, linked where it appears and kept in CureCircle's evidence base with the source's own words. It is not medical advice. Read on 7 November 2026.

Many people with coeliac disease spent years being told it was stress or a sensitive stomach before a blood test and a biopsy gave the answer. After diagnosis the treatment is simple to state and hard to live: no gluten, ever. How long diagnosis took, which symptoms came first, how strictly the diet can be kept, and what still causes trouble are the questions research on coeliac disease is asking, and people living with it hold the answers.

How many people live with it

A 2026 meta-analysis in Gastroenterology found a global seroprevalence of 1.5% and a biopsy-confirmed prevalence of coeliac disease of 0.8%. In population studies, new diagnoses run at about 21.3 per 100,000 children and 12.9 per 100,000 adults each year.

The records worth keeping

NICE's guideline on coeliac disease describes the tests and reviews that leave records:

• An antibody blood test: IgA tissue transglutaminase (tTG) as the first choice, with an endomysial antibody (EMA) test if tTG is weakly positive.
• A biopsy to confirm it: adults with positive tests are referred for endoscopic intestinal biopsy to confirm or exclude coeliac disease. The pathology report is the diagnosis record.
• A yearly review: NICE recommends an annual review, which may lead to a DEXA bone scan.

Repeat antibody tests over the years show how well the diet is working. If you do not have your results, ask your practice or hospital for a copy.

What sharing it is worth

CureCircle values every contribution with a public benchmark built from what health data has sold for. A complete coeliac disease story with the records the guideline lists comes to about $100 per licence on the benchmark today. Every line and its source is on the coeliac disease page.

A licence is not a one-off sale: the same de-identified story can be licensed to several research teams, and you earn a share each time.

How to share it

You start by writing what you live with in your own words; a few quick questions follow, then an AI interviewer asks about the details only you know, such as how long a diagnosis took, and you rate what helped, from the diet itself to supplements and support. You can add blood results, your biopsy report and clinic letters as PDFs or photos, and the AI reads them into your own medical file. Parents can share the story of a child with coeliac disease. Before anything is shared, you read the de-identified summary and decide.

Start your story, or read what your health data is worth first.