Shared by our community
What people shared, and what it earned them
These contributors chose to show their story as an example. No names, nothing that identifies anyone: the condition, what they shared, and what their data has earned so far.
The first examples appear here soon
When contributors submit their story, they can choose to show it here. Yours could be one of the first.
Already happening elsewhere
What patients have been paid for sharing their health
Published payments to patients and caregivers for a research interview or survey about their condition, or for their DNA. Each one links to its source and the source's own words. For hourly rates, trials and sensor data, read what patients are paid for research.
Crohn's disease, Ulcerative colitis
$210
Crohn's disease, microscopic colitis and ulcerative colitis patients, 90-minute phone interview plus confirmation of diagnosis
Rat Race Rebellion, 2025source
$200
Endometrial cancer patients, 90-minute phone interview
Rat Race Rebellion, 2025source
$150
Alopecia areata patients, 90-minute phone interview
Rat Race Rebellion, 2025source
$120
Amyloidosis (ATTR-CM or ATTR-PN) patients, 60-minute phone interview
Rat Race Rebellion, 2025source
Eczema
$120
Atopic dermatitis (eczema) patients, 60-minute phone interview
Rat Race Rebellion, 2025source
COPD
$120
COPD patients, 60-minute phone interview
Rat Race Rebellion, 2025source
Huntington's disease
$120
Huntington's disease patients and caregivers, 60-minute phone interview
Rat Race Rebellion, 2025source
Breast cancer
$120
Metastatic breast cancer patients, 60-minute phone interview
Rat Race Rebellion, 2025source
Alzheimer's disease
$60
Alzheimer's disease patients over 65 and caregivers, 30-minute phone interview
Rat Race Rebellion, 2025source
Colorectal cancer
$60
Colorectal cancer patients, 30-minute online survey
Rat Race Rebellion, 2025source
Lupus
$60
Systemic lupus erythematosus patients (non-Caucasian), 30-minute online survey
Rat Race Rebellion, 2025source
Rheumatoid arthritis
$50
Rheumatoid arthritis patients, 30-minute online survey
Rat Race Rebellion, 2025source
$400
Chronic lymphocytic leukemia patients, 90-minute research interview plus a short journal
CLL Society, 2023source
$21
LunaDNA: value of a whole genome contributed by a person, paid in company shares
ThinkAdvisor, 2018source
50 shares
LunaDNA: value of consumer genotyping data contributed by a person, paid in company shares
ThinkAdvisor, 2018source
$100
Patient or caregiver 60-minute telephone interview
Rare Patient Voice, 2017source
$50
Patient or caregiver 30-minute online survey
Rare Patient Voice, 2017source
$400
Advanced or metastatic kidney cancer patients, 90-minute phone interview plus a 5-day journal
Kidney Cancer Association press room, 2015source