All types of Ehlers-Danlos syndrome combined, worldwide
at least 1 in 5,000
people per 10,000 (lower bound), worldwide
“The combined prevalence of all types of Ehlers-Danlos syndrome appears to be at least 1 in 5,000 individuals worldwide.”
NIH MedlinePlus Genetics, Ehlers-Danlos syndrome (Frequency), 2022-07
- Kind of source
- Registry or statistics office
- Read on
- 2026-11-06
- Daily check
- Quote found at the source on 2026-11-06
- What to know
- A lower bound: the hypermobile type alone may affect as many as 1 in 5,000 to 20,000 people.
Used in
Kept as evidence; no figure on the platform is computed from it yet.