Overall prevalence of Ehlers-Danlos syndromes

1 in 5000

people per 10,000, worldwide

“The overall prevalence of Ehlers-Danlos syndromes (EDS) is cited as 1 in 5000 based on a publication by Pyeritz (2000)”

The Ehlers-Danlos Society, Are the Ehlers-Danlos Syndromes and Hypermobility Spectrum Disorders Rare or Common?, 2024-04

Kind of source

The payer's or seller's own page

Read on

2026-11-06

Daily check

Quote found at the source on 2026-11-06

What to know

The Society notes this is likely an underestimate (it also cites 1 in 3100 from Welsh records, and 1 in 600 to 1 in 900 for hEDS plus hypermobility spectrum disorder). 'worldwide' scope is not stated by the source. Page date inferred from its header image upload.

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Ehlers-Danlos syndrome