People living with cystic fibrosis in the United States, 2020

38,804

people, US

“We estimated the 2020 prevalent CF population between 1968-2020 to be 38,804 (95% Uncertainty Interval (UI): 38,532 to 39,065) individuals”

Journal of Cystic Fibrosis 2023, Cystic fibrosis prevalence in the United States and participation in the Cystic Fibrosis Foundation Patient Registry, 2023-03

Kind of source

Registry or statistics office

Read on

2026-11-06

Daily check

Quote found at the source on 2026-11-06

What to know

Estimate for people born from 1968 on (so older survivors are not counted), based on the Cystic Fibrosis Foundation Patient Registry.

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Cystic fibrosis